Coach for Asperger's

Married to Someone with Asperger’s?

Note: Added 4/11/10. This blog has moved! I'll be leaving the old blog up for a while, but updated posts will be on my new blog. For more info on this topic, as well as lots of book reviews, professional and personal resources for individuals of all ages with Asperger's, autism, ADHD and ASDs, please check my new blog, Thrive on the Autism Spectrum.

A lot of people, usually women, call me because they suspect or wonder if their partner or spouse might have Asperger’s or autism. They might be looking for a way to understand, a solution to a specific problem, or a way to “fix” their partner. (If you’re wondering, no I can’t fix your partner, that would be like trying to fix my left-handedness. Asperger’s is a neurological and behavioral difference, not something to be fixed -  which doesn’t mean that all couples can’t learn to communicate and relate to each other in a healthier way.)

There are many reasons a person would choose to be involved in a romantic relationship with an individual on the autism spectrum. Often the autistic partner is more reliable, honest and steady, there’s usually a relief since there’s so much less game playing. A lot of men with Asperger’s seem to really see the woman for who she is, not being drawn in to the cultural limitations that women must fit a certain mold. And of course, the intellectual depth can be very appealing.

At the same time, autism and Asperger’s really do involve a different way of seeing the world and dealing with it, especially socially, in the context of relationships. This fact can mean real difficulties within marriages. All marriage counselors quickly see that the very things that draw a couple together in the first place are the same things that really bother them later on. The strength of Asperger’s that draw a couple together can also pull them apart.

For those neurotypical spouses and partners looking for support, GRASP has an new online group. GRASP, The Global and Regional Asperger Syndrome Partnership, has a number of local support groups, primarily on the East Coast, as well as online support groups for various Asperger’s related issues. One of the great strengths of GRASP is its strong support of adults on the spectrum, as well as the focus on having autistic individuals running the organization. If you’re a neurotypical partner of an individual on the spectrum, why don’t you check out this new group?

Temple Grandin Movie Premiers This Saturday on HBO

Note: Added 11/3/10. This blog has moved! I'll be leaving the old blog up for a while, but updated posts will be on my new blog. For more info on this topic, as well as lots of book reviews, professional and personal resources for individuals of all ages with Asperger's, autism, ADHD and ASDs, please check my new blog, Thrive on the Autism Spectrum.

Don't forget, the Temple Grandin movie is premiering on February 6, 2010 on HBO! Most of my readers are familiar with Temple Grandin, PhD, perhaps the most well known autistic person in America, as well as the designer of almost half the cattle handling equipment in North America. Dr. Grandin is inspiring because of her clear presentation and writing style, as well as the way she’s learned to adapt the strengths of her diagnosis to accomplish things she probably wouldn’t have been able to if she weren’t autistic. Dr. Grandin remains a free thinker, an individual who lives a life that is meaningful for her, and expands our own vision (whether autistic or neurotypical) of what a successful life can be.

Our society so frequently presents one way of succeeding in the world, with a fixed idea on success, relationships and how we should behave. Dr. Grandin is an example to all of us on how success can really be defined by the individual. Although she writes about learning social skills and has adapted to a neurotypical world in some ways, at the same time she remains true to herself, defining her own needs and wishes with regard to career and relationship. I always enjoy Dr. Grandin's writing, and I'm looking forward to this movie.

Transitioning to Adulthood

This blog is aimed at teens and adults  with Asperger's and autism, and my other blog, Social Skills for Kids is really written for the parents of younger kids with ASDs. However, frequently the two areas overlap, and I'm not sure where to best post material. (In fact, I'm thinking about combining both blogs into one with more info.)

If you're a teen or parent of a teen, please check out my latest post on Social Skills for Kids on the importance of transition planning for the post high school years .

Getting the Job Done

Note: Added 11/3/10. This blog has moved! I'll be leaving the old blog up for a while, but updated posts will be on my new blog. For more info on this topic, as well as lots of book reviews, professional and personal resources for individuals of all ages with Asperger's, autism, ADHD and ASDs, please check my new blog, Thrive on the Autism Spectrum.

Many of my clients on the autism/Asperger’s spectrum really struggle with productivity and distraction and the seemingly simple matter of getting things done. Although this is an issue for neurotypicals as well, I find that distraction and procrastination can be a lot more challenging for those on the spectrum.

Frequently, procrastination and distraction can occur when people get caught up in details and lose sight of the big picture.That’s not surprising really, because one of the key traits of both autism and Asperger’s can be, as stated in the DSM IV, a “persistent preoccupation with parts of objects.” Uta Frith refers to this “detail focus” as Weak Central Coherence. While a detail focus can result in amazing achievement and the ability to work creatively and deeply, at the same time, it can lead to lots of activity with little output. Generally, work output does require the leap from detailed focus to a more general viewpoint. Sometimes individuals can afford to take the time to study, learn, delve deeply into an idea and see where the material leads them. But often, this drifting, detailed investigation can be nothing but a waste of time.

So, how do you move from the details to the big picture? With many of my clients I try to take advantage of their strength in visual processing. Create a graphic image of the project, listing all the details. Headline this image of details with a title explaining how all these terms relate. That headline is usually the big picture.The details can be organized in different ways, depending on how you think. If you’re logical and structured try creating a numbered, indented outline, with small details organized into bigger topics. If you’re more artistic than mathematical, a “detail cloud” may be more meaningful. This is similar to those keyword clouds that sometimes appear on the sidebar of blogs.

Whatever you create to explain your project, put it clearly on a piece of paper where you can see it at a glance. Ask yourself frequently, “How does what I'm doing relate to what I'm trying to produce?” and “What am I trying to produce here?” Confused? An example can mean a lot more than an explanation, so please check back for the next blog posting where I'll show some examples of these techniques.

Autism and Strengths in Problem Solving

Note: Added 11/3/10. This blog has moved! I'll be leaving the old blog up for a while, but updated posts will be on my new blog. For more info on this topic, as well as lots of book reviews, professional and personal resources for individuals of all ages with Asperger's, autism, ADHD and ASDs, please check my new blog, Thrive on the Autism Spectrum.

It’s exciting to find researchers focusing on all the strengths that go along with autism and Asperger’s, the enhanced abilities and skills, and not just studying deficits and difficulties. On that topic just this month, there was an interesting study published in the journal Human Brain Mapping.

The study compares autistic and non-autistic individuals’ performance on a standard assessment tool called Raven's Standard Progressive Matrices (RSPM). What’s perhaps most interesting about the study is that the autistic subjects performed better than would have been predicted by the results of their IQ tests, and that the autistic subjects, while as accurate as their non-autistic counterparts, performed the test more rapidly. There were also differences in which areas of the brain were active, indicating that the autistic subjects used more visual processing in their reasoning.

Lead author Isabelle Soulières, a post-doctoral fellow at Harvard University who completed the experiment at the Université de Montréal, commented, "Some critics argued that autistics would be unable to complete the RSPM because of its complexity, yet our study shows autistics complete it as efficiently and have a more highly developed perception than non-autistics."

Per the test publisher, “Raven’s SPM is a nonverbal assessment tool designed to measure an individual’s ability to perceive and think clearly, make meaning out of confusion, and formulate new concepts when faced with novel information. It has been used world-wide for more than 70 years.” The article, Enhanced visual processing contributes to matrix reasoning in autism, by Isabelle Soulières, Michelle Dawson, Fabienne Samson, Elise B. Barbeau, Chérif P. Sahyoun, Gary E. Strangman, Thomas A. Zeffiro, Laurent Mottron, was published online on 15 Jun 2009. You can find a review at Autism News or read the abstract for the study online.

Neurodiversity Online

Note: Added 11/3/10. This blog has moved! I'll be leaving the old blog up for a while, but updated posts will be on my new blog. For more info on this topic, as well as lots of book reviews, professional and personal resources for individuals of all ages with Asperger's, autism, ADHD and ASDs, please check my new blog, Thrive on the Autism Spectrum.

It seems like the word “Neurodiversity”, and the ideas of respect for autism rights that it represents, comes up more and more frequently online and in print. Yet, at the same time, I find that most of the individuals I meet, frequently parents of children with autism or Asperger’s, as well as adults who think they may be autistic or have Asperger’s, have never heard of the word neurodiversity. In this posting, I wanted to list some links to websites that deal with neurodiversity, so my readers can explore these ideas on their own.

The Oxford American Dictionary that came with my Mac, copyrighted in 2005, does not list the word “neurodiversity”. You’re going to need something more up-to-date. You could start with with WordSpy.com, “The Word Lover’s Guide to New Words.” This site defines neurodiversity as: “The variety of non-debilitating neurological behaviors and abilities exhibited by the human race.” Of more interest is that the site lists sample citations of the word, in the New York Times and Geocities, and the earliest citation of the word, in the Atlantic Monthly in 1998.

For a different, and somewhat more positive, definition, try Everything2.com  which defines neurodiversity as “The concept that variance in neurological structure adds needed diversity to the human race. The celebration of that diversity. Or, a word referring to the variety of ways in which the human brain can be wired.”

You can find a very inclusive listing of neurodiversity resources and websites at neurodiversity.com

For a frequently cited voice of the autism rights movement, go to ASAN. The Autistic Self Advocacy Network, defines itself as:

 “.. a non-profit organization run by and for autistic people. ASAN's supporters include autistic adults and youth, those with other distinct neurological types and neurotypical family members, professionals, educators and friends. ASAN was created to provide support and services to individuals on the autism spectrum while working to change public perception and combat misinformation by educating communities about persons on the autism spectrum. Our activities include public policy advocacy, community engagement to encourage inclusion and respect for neurodiversity, quality of life oriented research and the development of autistic cultural activities and other opportunities for autistic people to engage with others on the spectrum.”

The founding president of ASAN, Ari Ne’eman is featured in the public service announcement, “No Myths”, along with other autistic individuals.

And, just this week, Salon.com published "I am not a puzzle, I am a person", by Elizabeth Svoboda regarding the “autism culture movement”.

The online resources are endless, and I’m sure I missed some very important ones, but this list is a place for people to start exploring. If I have missed your favorite site, please send me a comment.

Asperger’s, Autism, and Adult Women

Note: Added 11/3/10. This blog has moved! I'll be leaving the old blog up for a while, but updated posts will be on my new blog. For more info on this topic, as well as lots of book reviews, professional and personal resources for individuals of all ages with Asperger's, autism, ADHD and ASDs, please check my new blog, Thrive on the Autism Spectrum.

For a long time, the autism media focus has been about young boys with Asperger’s and autism. But lately I’m noticing more of a focus on women with autism and Asperger’s. I’ve talked about women on the autism spectrum briefly, especially how tough it is to find information about how women and girls are impacted. Although the media stories or TV interviews may be poorly done, and the information can be misleading, I think this increasing media attention is a good thing because it can help bring down some of the stereotypes and raise awareness that autism and Asperger’s are not strictly about young males.

Glamour magazine, March 2009, ran a story “They’re Autistic - And They’re In Love” where they depicted Dave Hamrick and Lindsey Nebeker, who both have autism diagnoses. The story tends to play into the stereotypes, and doesn’t address much about the strengths that can come along with the diagnosis. But, it does tell about a positive relationship that seems to work for the couple. It also shows how adults can bypass all the limitations that medical professionals may predict about children. The article states that Hamrick’s parents were told he would never be able to work or live alone. Now he’s a college graduate who majored and works in meteorology.

America’s Next Top Model ran this season with a contestant, Heather Kuzmich, who says she was diagnosed with Asperger’s at age 15. I don’t watch this show, so I don’t have much to say about it. You can find a truly dreadful You Tube interview with Kuzmich. She’s does a good job on the interview, but the interviewer seems so uninformed and uncomfortable about the topic of Asperger’s, it’s a bit difficult to watch.

Finally, everybody has probably heard about Mary McDonnell on Grey's Anatomy as Dr. Virginia Dixon, a cardiac surgeon with Asperger's. I’ve only seen one episode of this character, but I got some idea of how the character was depicted.  It’s a shame that the portrayal is so broad and the character doesn’t seem to be coping as well as one would expect of a person who made it through medical school. Still, it does present the idea that Asperger’s and autism are a part of a spectrum and some individuals with Asperger’s are extremely successful professionally.

The media has a long way to go in showing all the aspects of the autism spectrum. These depictions of women are certainly flawed, but they do raise the visibility of women with the condition. They also start to present a more balanced picture, that autism is not a condition that affects only male children, and that some individuals with autism or Asperger’s can be very successful. I look forward to the day that the interviewers ask these successful individuals about how Asperger’s or autism contributed to their success.

 

Strengths of Asperger’s: Genius and Intellectual Gifts

Check out the latest autism article in the UK’s TimesOnline: Autism genes can add up to genius: Intellectual gifts and certain brain disorders are closely related, by Jonathan Leake. Leake discusses a Cambridge University study by Simon Baron-Cohen which studied mathematicians and their siblings and found a much higher rate of autism among them than in the rest of the population.  Baron-Cohen stated,  “It seems clear that genes play a significant role in the causes of autism and that those genes are also linked to certain intellectual skills.” This new study seems to agree with some of Baron-Cohen’s earlier work, where he found, “Separate studies have shown that the fathers and grandfathers of children with autism are twice as likely to work in engineering. Science students also have more relatives with autism than those in the humanities.”

In the article, Leake also discusses a study by Patricia Howlin, of the Institute of Psychiatry at King’s College London, which found 39 of 137 people with autism possessed an “exceptional mental skills, such as memory.”

Thanks to the Autism Hub blog LeftBrainRightBrain for pointing me in the direction of this article.